Advancing Trust,
Equity & Community
Impact
Helping organizations reach rare kidney disease communities early — building awareness, strengthening trust, and ensuring no one faces a diagnosis without the information and support they need.
“My goal is to ensure that conversations around APOL1 move upstream — increasing awareness, strengthening trust, and connecting more individuals to the information and support they need.”
— Jaime Albright, MSW
By the Numbers
The data behind the urgency — and why this work cannot wait.
1 in 7 U.S. adults has chronic kidney disease — most with no symptoms.
Source: CDC, 2026 ↗Black Americans develop kidney failure at nearly 4 times the rate of white Americans.
Source: American Kidney Fund ↗Carry two APOL1 high-risk variants — an estimated 4–6 million people with elevated lifetime kidney disease risk.
Source: NephCure Kidney International ↗The vast majority of people living with chronic kidney disease don't know they have it.
Source: CDC / American Kidney Fund ↗Strategic Value We Bring
A unique combination of lived experience, international credibility, and deep community trust.
Lived Expertise
Firsthand understanding of the rare kidney disease patient journey — offering real insight into barriers, motivations, and daily realities that don't appear in clinical data.
International Credibility
Recognized across the kidney health ecosystem through engagements with the Congressional Black Caucus, FDA/KHI APOL1 Advisory Council, ISGD, NORD, NKF, AKF, and NephCure.
Community Relationships
Deep-rooted relationships with patient communities, HBCUs, local organizations, and trusted community partners — essential access points for rare kidney disease outreach and awareness.
Patient Engagement & Program Insight
Patient-centered insight that ensures programs reflect real community priorities, while identifying and recommending trusted patient voices when broader perspectives are needed.
Recognized & Engaged By
Government & Policy
Medical Societies & Research
Pharmaceutical & Biotech
Patient Advocacy & Nonprofits
Ready to Collaborate?
Whether you're a pharmaceutical company, nonprofit organization, healthcare institution, or community partner, let's work together to strengthen awareness, build trust, and create meaningful connections that improve outcomes for individuals and families affected by kidney disease.
Get In Touch